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Eating disorders have the highest mortality rate of all mental illnesses and are only becoming more common in our society. Melbourne mum of three, Jeanie, speaks on her experience watching her daughter develop an eating disorder at only 15 years old. She offers insight into how to heed the warning signs in your child.

For most, eating is a pleasant and sociable experience. However, this is not the case for one million Australians who suffer from an eating disorder. As a parent, it can be your worst nightmare watching this illness take control of your child’s life. 

This was the unfortunate reality for the loving mother of three, Jeanie, who lives in outer Melbourne along with her husband, where they spend their time going for walks with their two dogs and enjoying their quiet country town. Raising two sons and one daughter, Jeanie’s household was full of laughter and love. However, life became daunting once Jeanie began to experience the deterioration of her daughter, who developed an eating disorder at the early age of 15. 

Jeanie speaks openly about how it felt watching her daughter’s sudden switch in behaviour towards food and life in general. She shares her pain, “You feel like an absolute failure at parenting because this precious child was obviously suffering right in front of you and you just let it happen”.

“You feel like an absolute failure at parenting because this precious child was obviously suffering right in front of you and you just let it happen.”

The most lethal eating disorder, anorexia, is known for having one of the highest mortality rates of all psychiatric disorders, making it the most deadly mental illness. An Arcelus study recorded that there are 5.1 deaths per 1000 people with anorexia each year and it continues to grow. 

Jeanie’s daughter was diagnosed with anorexia nervosa in 2016, after expressing concern in regards to her extreme weight loss.

Now more than ever, the after-effects of experiencing a pandemic and dealing with multiple lockdowns in Australia, has had an extreme influence on the number of eating disorders since pre-COVID. The number of new eating disorder cases increased by 34%, rising from a weekly average of 654 in 2020 to 878 in 2021. The Butterfly Foundation, a helpline for those struggling with eating disorders or body image issues, stated they have experienced “High volumes of calls due to the challenges of COVID for many people experiencing eating disorders”.

The unfortunate reality of this mental illness is that you cannot prevent it from taking over your child’s mind. Many parents, including Jeanie, have little control over their child’s eating disorder and how they choose to cope. However, it is possible to pick up on warning signs in the early stages of an eating disorder and provide help for your child before it spirals further. Disordered eating habits can be the first indicator/gateway into an eating disorder. 

Disordered eating vs Eating disorder

According to assistant professor Katie Loth, “Disordered eating is the most significant risk factor for the onset of an eating disorder.” It is important to distinguish the difference between both disordered eating and eating disorders. Those who have disordered eating habits do not always spiral into an eating disorder. However, it is still an extremely dangerous habit and can have similar lasting effects that of an eating disorder. 

“Disordered eating is the most significant risk factor for the onset of an eating disorder.” 

Disordered eating habits have become more normalised in society as people, including young children, find different ways to lose weight in hopes of achieving an unrealistic body standard. Jeanie speaks of warning signs she picked up on from her own experience with her daughter. “She had always been a great eater growing up, it wasn’t until a couple years into high school at her All Girls college when she started to shift.” Jeanie recalls moments where her daughter slowly stopped joining in on a family cheese platter, food she used to enjoy and asking for salads in her lunch. At first this may seem completely normal and somewhat healthy. However, it is essential to pay close attention to your child’s eating habits at all times and keep an eye out for warning signs. These signs can range from anything between physical and emotional indications. 

Physical signs

  • Noticeable fluctuations in weight
  • Stomach complaints
  • Hair thinning
  • Changes in menstrual cycle (for girls)
  • Increased fatigue

Emotional signs

  • Preoccupied with food, calories and their body image
  • Limiting specific food groups (eg. carbs)
  • Withdrawing from social activities and any activities involving food (eg. dinners)
  • Anxious prior to or during eating times 

At first, Jeanie didn’t suspect her daughter’s actions to be an alarming behavioural change, but assumed she was “trying to act older” and was simply “too sophisticated for a sanga, banana and a little chocolate in her lunch”. 

Eventually, Jeanie started noticing that her daughter had grown a sudden willingness to take control of the food she was putting into her body, through diet and restriction.

Dieting

National Eating Disorders Collaboration (NEDC) affirm that “Dieting is one of the strongest predictors for the development of an eating disorder.” This can include anything from your child simply replacing meals for ‘healthier’ alternatives or restricting specific foods. This supports the false notion that certain food groups are ‘bad’ and should be avoided. It is important to stay mindful of this and ensure that food groups are not labelled as good or bad when educating children on the importance of nutrition and health. 

Motivation Behind Disordered Eating

It can be collectively agreed upon that the main intention behind disordered eating is the pressure to ‘look’ a certain way. Jeanie explains that once her daughter lost her “Pre-adolescent weight,” she began receiving an influx of compliments, which inevitably fed the motivation behind her disordered eating. Jeanie believes the focus on the “Selfie” and the “Beginning of the instagram age,” puts an immense amount of pressure on teenagers to focus on their appearance in ways that are damaging.

Pressure on Parents

Not only does disordered eating affect the lives of those who fall victim to the illness, but for their loved ones too. Jeanie expresses her times of hardship dealing with emotions of guilt, stress and worry regarding her daughter’s illness. “Of course, I blamed myself. There were times in my life where I had ‘cut carbs’ or fasted or whatever. Had she watched me do that and learned dieting behaviour?” Not only did this cause Jeanie an extreme amount of anxiety, but she also found herself growing annoyed with her daughter during this time. “It was very, very frustrating. There were times when I wanted to yell, ‘Just f****** eat the cake!!!’ or whatever it was”. 

“Of course, I blamed myself. There were times in my life where I had ‘cut carbs’ or fasted or whatever. Had she watched me do that and learned dieting behaviour?”

Fortunately, Jeanie’s daughter is slowly recovering after six long years of dealing with this horrible illness. Despite still struggling with health issues related to liver function and a weakened immune system as a result of her eating disorder, Jeanie’s daughter is growing stronger mentally and physically every day. 

No one is safe from this illness. Anyone can fall victim to disordered eating and can eventually develop an eating disorder at any stage in their lives, despite their relationship with food. Disordered eating habits are all around us and it is our responsibility as a society to pick up on these unnatural behaviours, put a stop to it and ensure it does not progress any further.

Jeanie shares a piece of advice she urges parents to take on board: “Jump on it! Educate yourself and trust your instincts. The earlier the intervention, the earlier you can start removing this monster from your loved ones’ heads, because it can spiral so quickly”. 

Jeanie and Phoebe, January 2019.

If you or a loved one are struggling with any of the issues discussed in this article, please contact Butterfly Helpline. Be sure to confide in your friends, family or anyone willing to listen for support.

Young children often put non-food items in their mouths, such as grass or toys, because they’re curious about the world around them. However, children with Pica take this a step further and actually eat them.

A boy playing in the dirt

What is Pica?

Pica is an eating disorder characterised by the compulsive eating of non-food items. A person with Pica may eat relatively harmless substances, such as ice, but many crave potentially dangerous ones, including hair, dirt or faeces. This can lead to serious complications and occasionally death. The name is derived from the word ‘pica’, meaning magpie, based on the idea that magpies will eat almost anything.

Pica is diagnosed when:

  • A patient persistently eats non-food items for greater than a month
  • This consumption is developmentally and culturally inappropriate.

If the behaviour occurs in a patient with another disorder, such as autism, it must be persistent enough to warrant a separate diagnosis.

Who develops Pica?

Anyone can develop Pica, however it is most common in young children, pregnant women and people with developmental disabilities. It is unclear how many people are affected, but it is believed to be more prevalent in developing countries due to higher levels of malnutrition and food insecurity.

Pica can also be found in other animals, such as dogs or cats.

Causes

There is no clear cause of Pica, but doctors have found that it is more common in individuals who experience:

 

  • Malnutrition
    A boy playing on the beach
  • Iron deficiency
  • Autism
  • Intellectual disabilities
  • OCD
  • Schizophrenia
  • Trichotillomania
  • Excoriation disorder (also known as dermatillomania)
  • Emotional trauma
  • Parental neglect
  • Maternal deprivation
  • Family issues
  • Pregnancy

Pica and pregnancy

Pica in pregnant women is thought to be caused by iron deficiency anaemia. It’s not uncommon for pregnant women to crave strange combinations of food, however, to be diagnosed with Pica the woman must be craving and ingesting non-food items such as soil, ice, or laundry detergent.

Worldwide, Pica is thought to occur in 25% of pregnant women. The reasons for this are often attributed to the geographic region and the associated risk of malnutrition and anaemia.

Pica in children

Children with dirty hands

Young children often put non-food items in their mouths, such as grass or toys, because they’re curious about the world around them. However, children with Pica take this a step further, and actually consume them.

Small children make up 25 to 33 percent of all Pica cases. The minimum age for diagnosis is two years, as children under two often eat non-food items due to lack of understanding.

Pica in adults

In adults, Pica is usually a symptom of an underlying medical condition, such as iron deficiency anaemia. If not, it is often caused by psychiatric conditions or developmental disabilities.

It is difficult to determine the prevalence of Pica in adults, as many may not want to admit to craving and eating non-food items. In institutionalised adults, the prevalence is 21 to 26 percent.

In order for an adult to be diagnosed with Pica, the eating behaviour must be culturally inappropriate. In certain cultures, a non-food item may be considered appropriate for consumption. For example, eating dirt and clay is considered a custom in some parts of rural Mississippi.

Pica in animals

brown tabby cat in blue ceramic vase
A cat sitting beside a succulent

Many animals, such as cats and dogs, chew on non-food objects, but a much smaller percentage actually consume them. Pica behaviours are often caused by behavioural problems, such as anxiety, boredom, or compulsive behaviour. It is also seen in dogs who are teething.

Dangers

Eating non-food, non-digestible and potentially toxic materials can have numerous consequences, including:

  • Malnutrition
  • Gastrointestinal issues
  • Dental issues
  • Choking
  • Intestinal obstruction
  • Intestinal parasites
  • Internal bleeding
  • Damage to internal organs
  • Lead poisoning
  • Brain damage

Treatment

Treatments for Pica vary depending on the underlying cause. For example, if symptoms are due to iron deficiency, supplements and dietary changes may alleviate symptoms without other treatment methods.

Behavioural modification techniques are often used, assisting sufferers to unlearn Pica behaviours. These techniques include:

  • Aversion therapy, where the individual faces a negative consequence for eating non-food items. For example, a child may have his or her toys confiscated, and a dog may be sprayed with water.
  • Positive reinforcement, where the individual is rewarded for eating nutritious food, or for not engaging in Pica behaviours.
  • Overcorrection, where Pica behaviours result in the individual, usually a child, being required to dispose of non-edible objects, wash themselves, and participate in chore-based punishment when they engage in Pica behaviours.

Treatment may also include dealing with complications, such as surgery for intestinal obstruction.

boy holding ice cream with cone
A child eating an ice cream cone

Does Pica go away?

In young children and pregnant women, Pica often resolves on its own within a few months, or after childbirth. Similarly, if Pica behaviours are due to a nutritional deficiency, treatment and supplements should alleviate symptoms.

However, Pica doesn’t always go away. In those with mental illness or developmental disabilities, Pica may continue into adulthood. In these cases, ongoing treatment and support may be required, including counselling and behavioural modification techniques.

This Christmas marks the fourth anniversary since 7 year old Jarvis was diagnosed with cancer. Make a Wish foundation has been valuable in offering joy, hope and the chance to feel like a regular kid, for many children like Jarvis.

#WorstChristmasEver

It was only a couple of days before Christmas 2014 when Jarvis’ parents took him to the doctor for blood tests. He’d been feeling out of sorts, lethargic and falling asleep all the time, and they’d noticed bruises on his legs that weren’t healing.

Just two hours later, their GP rang and told them to go straight to the hospital where the team from Ward 3B were waiting. While their instincts told them something was wrong, the truth came crashing down as they arrived and saw the sign – Ward 3B was the children’s cancer ward.

At just four years old, Jarvis was diagnosed with Acute Lymphoblastic Leukaemia, a type of cancer that affects the blood and bone marrow.

The diagnosis came on Christmas Eve, and Jarvis started chemotherapy the same day.

For the whole family – Jo, Ben, Jarvis and his two little brothers – it quickly became the most desperate Christmas ever.

Every parent’s worst nightmare

Jo and Ben did their best to stay strong for their three boys – with their youngest just 16 weeks old at the time. However, Ben remembers feeling completely overwhelmed: “I was just walking through the ward, pushing the pram with the other kids, and it was all just a bit of a blur.”

In the months that followed, Jarvis began an intense course of medical treatment including daily chemotherapy and high dose steroids. However, the life-saving regime took a huge toll on his health, leaving him listless and often withdrawn. He gained around 40 percent of his body weight due to the steroids and was almost unrecognisable. His muscles also weakened to the point that his parents had to carry Jarvis between his bed at home and the hospital.

As Jo remembers, Jarvis hated going in for treatment. “He’d be crying and saying ‘please, don’t take me….’ He was old enough to know what was coming.”

Over the next three and a half years of treatment, Jarvis missed out on many of the things other kids might take for granted – from school and swimming lessons to birthday parties and playgrounds.

During this incredibly tough time, Jo and Ben felt they had to ‘bubble wrap’ their son.

His incredible wish

Through cancer support groups, Jo and Ben heard about Make-A-Wish® Australia and applied for a wish mid-2017. As a keen reader, Jarvis wished for a very special treehouse, much like the one in his favourite book, The 13-Story Treehouse.

As the #WishForce team quickly discovered, Jarvis’ treehouse had to be somewhere a young boy could escape his day-to-day cares, enjoy some quiet time, and let his imagination roam free. Of course, it also needed a veranda, a rock-climbing wall and its very own flying fox!

Construction began earlier this year, with Jarvis watching on excitedly as his vision came to life.

Today, visitors to the family’s home will find a two-storey treehouse taking pride of place in the backyard – with a good-natured seven-year-old playing with his brothers and friends inside.

Jarvis is now doing his best to put the years of cancer treatment behind him – and while it will be five more years of regular blood tests before he’s completely in the clear – thankfully, his chances of a full recovery are strong.

For Jo and Ben, the impact of their son’s wish journey is clear – it has allowed him to become ‘a regular kid’ again.

“Experiences like this give everyone hope and give kids who’ve missed out and faced a lot of adversity a bit of happiness. That’s very special – and so important,” says Ben.
Bake-A-Wish for kids like Jarvis

Each year, thousands of Australian children are diagnosed with a life-threatening illness. For their families and the kids themselves, life is put on hold while they learn to cope with and in the best cases, beat their illness.

Which is why a wish is so important – with the power to calm, distract and inspire sick kids at the time they need it most.

You can help bring more incredible wishes to life in 2019 by joining Make-A-Wish Australia’s largest ongoing fundraising campaign, ‘Bake A Wish’.

It’s a piece of cake, and whether you choose to arrange a dinner party with family and friends or an afternoon tea – every dollar raised means more unique and life-changing wishes coming true for sick kids like Jarvis.

Visit www.bakeawish.org.au or call 1800 032 260 to find out more, pledge your support and access your free fundraising toolkit.